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Building Your
Community
Sickle Cell
As One Foundation Sickle Cell 101 Sickle Cell Disease Association of America (SCDAA)  Axis Advocacy  Bold Plus for Sickle Cell  Cayenne Wellness Center  Martin Center for Sickle Cell Initiative Martin Center for Sickle Cell Initiative National Organization for Rare Disorders Piedmont Health Services and Sickle Cell Agency  Sick Cells Sickle Cell Anemia Awareness of San Francisco  Sickle Cell Association of America – Michigan Chapter  Sickle Cell Association of America – Michigan Chapter  Sickle Cell Association of New Jersey  Sickle Cell Association of Texas Marc Thomas Foundation Sickle Cell Community Consortium (SCCC) Sickle Cell Community Consortium (SCCC) Sickle Cell Disease Coalition  Sickle Cell Disease Foundation of California  Sickle Cell Foundation of Georgia   Sickle Cell Foundation of Tennessee  Sickle Cell Thalassemia Patients Network   Sickle Cell Warriors   Supporters of Families with Sickle Cell Disease William E. Proudford Sickle Cell Fund 

Living with sickle cell can be challenging, but it’s important to remember that you’re not alone. Beyond your loved ones and care team, there is an entire sickle cell community, including advocacy organizations, who are here to help. These organizations can provide you or your loved ones with ongoing support and resources.

Photo of Rev. Jimmie, who lives with sickle cell, discussing sickle cell disease awareness
 

I can say that in my suffering of it, it provides other opportunities to bring awareness. To me that’s
a blessing—to help someone else to understand the disease.”

I can say that in my suffering of it, it provides other opportunities to bring awareness. To me that’s a blessing—to help someone else to understand the disease.”

REV. JIMMIE

Living With Sickle Cell

Explore the organizations below for more information Explore the
organizations
below for more information

SparkSickleCellChange.com was created in collaboration with:

As One Foundation icon   As One Foundation
Sickle Cell 101 icon Sickle Cell 101
Sickle Cell Disease Association of America icon Sickle Cell Disease Association of America (SCDAA)

Additional support and resources include but are not limited
to:

Advocacy Organizations

Informational Resources

Links are provided for informational purposes only. We do not make or imply any endorsement of external websites.

SparkSickleCellChange.com was
created in collaboration with:

As One Foundation icon

As One Foundation

Sickle Cell 101 icon

Sickle Cell 101

Sickle Cell Disease Association of America icon

Sickle Cell Disease
Association of America
(SCDAA)

Additional support and resources include but are not limited to:

Advocacy Organizations

Informational Resources

Links are provided for informational purposes only. We do not make or imply any endorsement of external websites.

Every voice, no matter how big or small,
can spark a conversation and action to
help drive change for sickle cell.


Recognizing how sickle cell impacts your
life may help spark important
discussions with others.
How does sickle cell affect you?