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Tools & Guides
Sickle Cell

Explore these downloadable resources for additional
information about sickle cell.

Spark Good Care Guide

Spark Good Care Guide

Learn more about what a care plan can look like and how to work with a care team to plan for the future with sickle cell.

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Spark Sickle Cell Understanding Brochure

Build on your foundation of sickle cell knowledge to spark more meaningful conversations with your care team.

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Spark Sickle Cell Understanding Brochure
Spark Sickle Cell Knowledge Infographic Spark Sickle Cell Knowledge Infographic

Spark Sickle Cell
Knowledge Infographic

Explore what causes sickling in sickle cell and how it affects your body.

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Explore more on how sickle cell occurs and uncover how sickling can cause silent, progressive damage to the body.

Explore more on how sickle cell occurs and uncover how sickling can cause silent, progressive damage to the body.

Mechanism of Sickle Cell Disease Mechanism of Sickle Cell Disease

Mechanism of Sickle Cell Disease Mechanism of Sickle Cell Disease

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Explore more on how sickle cell occurs and uncover how sickling can cause silent, progressive damage to the body.

Explore more on how sickle cell occurs and uncover how sickling can cause silent, progressive damage to the body.

Continue to spark change today and every day by visiting the Spark Sickle Cell Change Facebook page. This page is updated regularly and aims to be a hub for factual, science-based, and trusted sickle cell information. You can explore stories from real people living with sickle cell, uncover the genetics behind sickle cell, learn how to advocate for better care in sickle cell, and so much more. 
Photo of Trey, living with sickle cell, and Rae, his parent
 

I came in as this 20-something-
year-old first-time parent, and I’m
asking all these "why" and "how"
questions, and I’m challenging
them by saying, show me the data,
explain these lab results, why is
this a trigger...And I was doing
that because how can I, as his
caregiver, truly teach him if
I don’t yet understand this
condition?"

I came in as this 20-
something-year-old first-time parent, and I’m asking all these "why" and "how" questions, and I’m challenging them by saying, show me the data, explain these lab results, why is this a trigger......And I was doing that because how can I, as his caregiver, truly teach him if I don’t yet understand this condition?”

Every voice, no matter how big or small, can spark a conversation and action to help drive change for sickle cell. Sign up to stay connected through email with resources, support, ways to connect with others, and more information about sickle cell.

Recognizing how sickle cell impacts your life may help spark important discussions with others to bring changes in your care and the care of your loved ones. How does sickle cell affect you?